A Journey Through Chronic Pain


What to do when things go wrong
May 20, 2008, 5:12 am
Filed under: Uncategorized

I was contemplating yesterday, which by the way was an awful day, when to give in and see the doc. I am one of these people who goes to see my physician as infrequently as possible. I have found that it is healthier that way. If you stay away, they can’t come up with more hokey shit to do to you that will largely not help anyhow!

But last summer I had to. I had to see my orthopod. I was having incredible pain in my low back and legs with significant neurological symptoms in my legs. In fact, my left leg, which is the only one which bends, was so weak that I found it very difficult to negotiate stairs or even step up on more than a short curb. After a couple of MRI’s I was told that I my back from L1-L5 was largely fucked! Herniated disks, stenosis, bone spurs, the whole enchilada!! Along with that was major nerve impingement. A course of conservative treatment went largely without improvement so the answer was surgery. So I went for a second opinion. And the answer was largely the same. So I decided that i was not going to give in to that. Since I was acutely aware that back surgery is a 50-50 proposition at best. And so I went home with a new resolve to make it better, to make me better! I started lifting weights, again, after a fairly long hiatus. I strengthened my core so as to support my back more efficiently. And gradually, over a period of weeks and months, I did improve. I did find that the symptoms abated, not totally, but significantly. Maybe through sheer force of will. Maybe because I realized that there was something more important in my life than pain and more surgery and more down time. That living had become a priority again to me, not just existing. And I managed to sustain for a long time. Months! And then the past few days the symptoms began to creep back in. Pain I can deal with, but the numbness and radiating in my legs and even my feet is tough. Yesterday was excruciating. It took me until mid-afternoon to feel “functional” even though I kept moving all day. It took that long for me to feel at all comfortable, enough to be able to sit and even lie down for a bit. And today it was some better. But not enough.
SOOOOO, I beg the question: When is enough, enough? When is it time to call the doc and say, “Help!!”? I am not sure I am there yet, but almost. We all have our “governor” for how much pain we can tolerate and which symptoms raise a red flag. I know the drill all too well. I know the drill for different body systems, which is even more disturbing. When do you go to the E.R. with a bowel obstruction? When do you do the same when dealing with addiction and withdrawal? And when do you say “enough” when it comes to whatever the issue is?? It is different for each of us. I guess for me, the threat of more surgery is a huge deterrent. I find that the idea of going through more surgery and rehab and the whole thing so distasteful, that I will avoid it at all cost. But even I have my limits. Even I know, when to say when. And so should you. And tomorrow might be that day. But………………………………………………………………….I know I can get through this. I know that once again I can beat the odds and keep my body whole and avoid the knife once again. I have to. I have much too much to live for!


4 Comments so far
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It would seem to me that if you had nerve impingement, then relieving that pressure against the nerve would help remedy some major problems, such as relieving the numbness. I don’t know your history with back surgeries, and of course I know very well how every individual’s case of back problems is quite different, but if I had a pinched nerve, I would go in there. Also, (full disclosure here) I have no significant findings other than pain, so I would love a diagnoses such as that. Have you considered dealing with the nerve impingement without messing with anything else, such as the bone spurs, in an effort to limit the trauma of too much surgery. A friend of mine had the bulge in his herniated disc removed orthoscopically, less invasive that way. Of course we know stories of people with pinched nerves and they have no symptoms, so who am I to tell you to put yourself through the torments of being sliced open.
My Doc recently suggested botox. Botox! I know it could help relax the muscles, but it’s still funny.

Comment by surferjay

Thanks for the comment! And on some level it does make sense. In the past I had a dorsal column stimulator placed (the whole story is on my blog) and it was a totally disaster! But that was only to relieve pain. This operation would be to improve pathology. And the suggestion by one surgeon was for minimally invasive surgery, however, the second opinion revealed another wrinkle. The second doc stated that minimally invasive surgery may not be of much help. Since I have significant stenosis, as well as collapsed disks, the only way for surgery to be of much benefit might be with a spinal fusion. Well, screw that!! Unless it comes to a point where I can no longer function without it, I am not subjecting myself to that kind of trauma!! And the problem comes in that they may not know what could be beneficial until they open me up!!! What a shock, to go in for something simple and wind up with 4 or 5 fused vertebrae!!

I sometimes wish I had uncomplicated back issues, something that popping a few muscle relaxants and chillin’ would help. But you and I know it’s not that easy! Going through tons of injections proved largely fruitless for me.
So all I can say is “hang in there”! I was thinking this morning how amazing this whole world of blogging is. How we connect with people who we otherwise would never meet on any level. I need to spend more time reading and less time writing. I am sure there are many out there, like yourself, who have far more interesting lives than I do.

Take care!!

Comment by caustin1

OW!! Sounds like a huge deal!!! And not one that I care to embrace any time soon!! I guess I am lucky in one respect. I have “good” bone. Very solid, very strong. In fact when I had my total hip, the doc was complaining that my bone was so hard that it took way more time to do the surgery than normal. Go figure!! So if it does come to having back surgery at some point, I am hoping that fact will be in my favor! Give them something to work with!!
I do think that not having a diagnosis is tough. In the days following my first back injury in the late 70’s I had a diagnosis of “lumbar radiculopathy” hence, “back pain”. Very non-specific, huh?? Well, I had treatments from Osteopathic manipulation to accupuncture to try and relieve the pain, some of which worked better than others. In later years, the thing I found that worked the best is “therapeutic massage”. I found a man in NY who is fantastic!!Turned me every which way but loose, let me tell you!! And I would get good relief, although it would not last significant amounts of time. So I would suggest that for you, Surfer Jay! If you haven’t tried it. Find someone who has as much training as possible in therapeutic techniques.
Hang in there guys!! Better days are coming!!

Comment by caustin1

At my old chiropractors office there was an excellent hippy massage therapist lady, I went to her for a year. Of course for me, this dandy homemedics electric massager works great, go figure.
Blue Cross denied me the botox injections, just recently. Dang, I need that brow lift also!

Oh, the official finding for me is moderate to severe degeneration of the L5-S1. Thats it. Not much for severe unrelenting pain. I must have read a dozen books by now in search of a cause. I even stole all my MRI/X-Rays to go over them myself while comparing them to illustrations of all the possible back disorders. i must have given myself 4 diagnoses by now. Of course they are all bogus. A guy can dream can’t he.

Funny thing, the Cross also denied me Lyrica, which is silly considering that I am taking gabapentin, and Lyrica is obviously going to soon render gabapentin obsolete due to it’s increased efficacy. Dam the FDA and their slow as snails trials for every particular possible use for a drug. We know it works! Just allow it!

“When is it time to call the doc and say, “Help!!””

Let’s try and call a family member and say “Help!” Quite often I find that to be more therauputic on many levels.:)

Comment by surferjay




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